You wouldn't believe how hard it is to hear how people are doing with this disease. I sometimes find myself getting depressed because I am not the same person I was 4 years ago. Then I stop and think about all the people that I have met over the last 3 years. Some of them are worse off then me and some are better off. I can't allow myself to feel like this. Why? Because I am alive. I can either take this disease and stand up to it continuing to live life the best I possibly can or I can let it beat me. I refuse to let it beat me. I REFUSE!!!
I don't understand why so many people don't know about this disease. You wouldn't believe how many people I have become friends with that have it. How many parents I have met that have children with it. How many families I have met that have lost loved ones to it. Yet you walk into most hospitals and they look at you and say huh.
I will make a difference. I know what my purpose in life is. My purpose in life is to take care of my family and help raise awareness! That is my purpose!!!!