Campaign poster

Well we have gathered all the pictures and designed the poster. It's in print now and will be available for distribution within the next month. I am so happy that things are starting to come together.
Next is getting the non profit completely up and functional.  This one is a process that take a lot of time and energy. I know it will be awhile before we see it running in full swing and raising funds but awareness is a key factor in all this work. 
One step at a time, one day at a time, one person at a time. That's all that matters.

Continue to sell to help raise money for other families affected by Moyamoya

Hard hearing Stories

You wouldn't believe how hard it is to hear how people are doing with this disease. I sometimes find myself getting depressed because I am not the same person I was 4 years ago. Then I stop and think about all the people that I have met over the last 3 years. Some of them are worse off then me and some are better off. I can't allow myself to feel like this. Why? Because I am alive. I can either take this disease and stand up to it continuing to live life the best I possibly can or I can let it beat me. I refuse to let it beat me. I REFUSE!!!
I don't understand why so many people don't know about this disease. You wouldn't believe how many people I have become friends with that have it. How many parents I have met that have children with it. How many families I have met that have lost loved ones to it. Yet you walk into most hospitals and they look at you and say huh.
I will make a difference. I know what my purpose in life is. My purpose in life is to take care of my family and help raise awareness! That is my purpose!!!!

Medications horrible

Slowly but surly getting stronger. Headaches are still a pain. The neurologist is now trying me on my 3rd medication since surgery. The first one made me dizzy and sick to my stomach all the time. The second one dropped my blood pressure really low. So far my blood pressure is still trying to stabilize again. It's crazy!
On another note I am trying to get a Facebook page organized to help raise awareness. I am a perfectionist. I started it back before my surgery and still haven't published it. I have so many ideas for raising awareness and I want to get this Non profit off the ground. Everyone is so worried that I am doing too much as it is but I just want to go go go....But my body says no no no...lol
I know I have to give my body time. It's only been almost 3 months. Guess that's really not that long. Just tired of my mind having all these ideas but I can't remember them all or do anything about them right now. It's frustrating.

Recovery

So far recovery hasn't been the easiest. Headaches are still the same if not a little worse. I have trouble sleeping. And I can't get things straight. Memory is sluggish and I am having an even harder time focusing. My vision has changed and so has my hearing. Hopefully it's all just pressure since I still have a lot of it on the left side. I shouldn't expect it to be as easy as the first one because this one was a lot harder. I had to have a double bypass, a direct and an indirect, with this surgery. Being told when you go in that you will have two new holes and they would cut behind the hairline to waking up with 4 new burr holes and a cut along the side of your face and forehead kinda scares you. They cut through every major muscle and nerve on the side of my face. I still can't raise my eye brow, forehead, or cheek on the left side. The doctors say that I should give it at least 6 months and it should come back. We will see. I just hope my scar fades. Main thing is I am still alive. Right!!!

I am alive!

On Nov. 20, 2012 I had a double bypass surgery completed on the left side of my head. I am doing ok right now but I am really weak. It's going to take me awhile but I will get back up. It's hard for me to keep focused for too long. It's only been a week and a half. I will post again soon. I hope all of you are doing ok.
Much love,
Kristy

We are home from my surgery.

My boys and I